RESOURCES
Web Resources
Barbara Karnes RN
End of Life Education Materials for Families & Professionals + blog
National Institute on Aging (huge variety of resources on aging and dying)
End of Life Clarity (resources and blog)
The Hospice Foundation of America (wide variety of resources)
Caring Info-National Hospice & Palliative Care Organization
Hospice and Palliative Care Information
American Bar Association (Myths and Facts About Advance Directives)
A Perspective on the End of Life: Hospice Care
Caring Conversations® Materials
National Polst Organization (POLST: Portable Medical Orders)
End of Life Planning, Advance Care Planning, and Grief Education
Life and legacy blog, courses and resources
Books
End of Life Guideline Series: A Compilation of Barbara Karnes Booklets
by Barbara Karnes RN (former hospice nurse)
Final Gifts: Understanding the Special Awareness, Needs, and Communications of the Dying
by Maggie Callanan and Patricia Kelley (former hospice nurses)
Being Mortal: Medicine and What Matters in the End
by Atul Gawande (surgeon at Brigham and Women’s Hospital, Boston, writer, Professor at Harvard Medical School)
Dignity In Death: Accepting, Assisting, and Preparing for the End of Life
by Barbara Frandsen (educator, caregiver for terminally ill son in law, and caregiver for son who became cancer survivor)
Farewell: Vital End of Life Questions with Candid Answers
by Edward T. Creagan, MD (oncologist, palliative care specialist, practiced at Mayo Clinic for over 40 years)
Caring for the Dying
The Doula Approach to Meaningful Death
By Henry Fersko-Weiss (hospice nurse and Founder of the first End of Life Doula Program)